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30-05-2017

  When I saw this piece of art, it was like someone had draw the exact image of how I feel right now.   Nothing seems to work with me, only against me. The everlasting pain is growing worse and worse every day. Catheterization had to be turned up a nudge instead of less, my […]

20-05-2017

When Malha was three months and bit old, she woke up with a cherry eye. Simply put, it’s a disorder of the third eyelid, where the gland pops out of its pocket due to too much space. At least, that was I was told. At first, it scared the hell out of me. She was […]

16-05-2017

    I had to go for a yearly check-up to the hospital in Leiden, the LUMC . I didn’t expect much after my last visit last year.  http://joycekleine.nl/1123-2/ My condition is rare, at least rare enough to not do more tests to find some cure, or some less destructive medication on the long run. […]

14-05-2017

  Mother’s day has always been a celebrated tradition in our family. When we were little, my sister and I struggled through the amazing breakfast in bed, balancing on a tray with all eyes focussed on our self-made presents we’d created at school. The croissants were replaceable, our DIY not! The song we were supposed […]

12-05-2017

When Ramon has to go away for a couple of days, whether its work-related or going on a motorcycle trip with friends, I always go through three stages. First one, being totally exited to be on my own for a few days. I love some  good company but I also love it very much just […]

9-05-2017

  I’m already enjoying my mother’s gift to the fullest. Yesterday she came by and help me do housekeeping. Lately I keep feeling worse and worse physically, which eventually nibbles hard on my emotional state of mind. Because I’m getting less and less stuff done, because I simply don’t have the energy for it, I’m […]

7-05-2017

I had a rough night. I was dreaming and scheming. When it was almost at the break of dawn, I had at least a 1001 plans on how I would take over the world this Sunday together with Kuzco and Malha. Ramon had to leave at lunchtime for a biker ride with my dad. But […]

2-05-2017

  ‘Oh, you are so gifted!!! You truly have the Midas touch!’ Is something I hear often. I have learned to nod and smile politely, but deep down I can only think how much I would rather have bought it in a store. I always say it’s not a gift, it a necessity born out […]